Below is a guest blog from Alice Borrelli, director of Global Healthcare Policy for Intel.
During today’s forum, hosted by Intel Corporation, The Aspen Institute and Bipartisan Policy Center, we will discuss how the promise of technology solving society’s complex goals will rely, in part, on how we manage the information explosion. And, nowhere is the challenge more evident than in personalized medicine where the human genome consists of 3 billion DNA based pairs. Intel and our partners are compressing processing time for genome sequencing to accelerate targeted and personalized medicine.
In a new policy paper -- Compute for Personalized Medicine -- Intel gives seven policy recommendations that will accelerate the usage of this critically important health information. We invite policy makers to join us in the quest to make genomics information accessible and clinically useful by considering the following recommendations:
1. Share the Data: Create and ensure the interoperability of technical standards for managing and sharing sequenced data in research and clinical samples.
2. Show me the Evidence: Determine clear guidelines for data sharing from clinical trials.
3. Streamline privacy regulations: Harmonize existing privacy laws to protect patient data while offering a pathway to maximizing the research data available today.
4. Show me the Money: Provide reimbursement models for clinical use of genomics and predictive modeling.
5. Clarify the Regulations : Provide guidance to reduce the regulatory overlap between CMS and FDA.
6. Protect My Predictions: Ensure that current genomic privacy laws provide adequate coverage for non-discrimination.
7. Bring it Now: Integrate the scientific discoveries into everyday clinical usage.